SURVEY OF SUPPORT FOR PREGNANT AND PUERPERAL WOMEN WITH DEVELOPMENTAL DISABILITIES
In Japan, no support system for mothers with developmental disabilities is currently in place. This study aimed to clarify the actual situation of support for pregnant and puerperal women with developmental disabilities in obstetrics and gynecology-related facilities. A self-administered questionnaire survey including free-form questions was distributed to 120 obstetrics and gynecology facilities in Prefecture A. The questionnaire responses were analyzed using descriptive statistics. The free descriptions were categorized and analyzed inductively. The valid response rate was 40.8% (n = 49). Twenty-five facilities reported dealing with pregnant and puerperal women with developmental disabilities, more than half of which provided support. None of the facilities had guidelines or pamphlets. Medical professionals felt a [lack of knowledge] and [difficulty in dealing with] support for mothers with developmental disabilities, and demanded the [construction of a support system].The present findings revealed that all facilities had problems with support systems and regional cooperation. Therefore, the establishment of a support method suitable for pregnant and puerperal women with developmental disabilities is needed.
Crossman, M.K., Parish, S.L., Hauser-Cram, P., Garcia, D.A., & Warfield, M.E. (2018a). The influence of early intervention, informal support and the family environment on trajectories of competence for fathers raising children with developmental disabilities. Res Dev Disabil, 81, 122–133. https://doi.org/10.1016/j.ridd.2018.04.025.
Crossman, M.K., Warfield, M.E., Kotelchuck, M., Hauser-Cram, P., & Parish, S.L. (2018b). Associations between early intervention home visits, family relationships and competence for mothers of children with developmental disabilities. Matern Child Health J, 22(4), 599–607. https://doi.org/10.1007/s10995-018-2429-x.
Dorani, F., Bijlenga, D., Beekman, A.T.F., Someren, E.J.W., & Sandra, K.J.J. (2021). Prevalence of hormone-related mood disorder symptoms in women with ADHD. J Psychiatr Res, 133, 10–15. https://doi.org/10.1016/j.jpsychires.2020.12.005.
Heifetz, M., Brown, H.K., Chacra, M.A., Tint, A., Vigod, S., Bluestein, D., & Lunsky, Y. (2019). Mental health challenges and resilience among mothers with intellectual and developmental disabilities. Disabil Health J, 12(4), 602–607. https://doi.org/10.1016/j.dhjo.2019.06.006.
Iida, N. (2018). A consideration into four cases of child care supports for mothers with highly-functioning autistic spectrum disorder. Social Welfare Science Research, 7, 149–157. (in Japanese).
Iida, T., Shingu, N., & Hori, Y. (2020). Behavioral characteristics in adolescents and adults with autism spectrum disorder through observation-based evaluation of psychiatric occupational therapy. Japanese Occupational Therapy Research, 39(6), 725–732. (in Japanese) https://doi.org/10.32178/jotr.39.6_725.
Iwata, C. (2015). The difficulties and needs of mothers with high-functioning autism spectrum disorders (ASD) in raising children: Qualitative analysis of mothers with HF-ASD. Social Welfare, 53(3), 44–57. https://doi.org/10.24469/jssw.56.3_44.
Kittel-Schneider, K., Quednow, B.B., Leutritz, A.L., McNeill, R.V., & Reif, A. (2021). Parental ADHD in pregnancy and the postpartum period – A systematic review. Neurosci Biobehav Rev, 124, 63–77. https://doi.org/10.1016/j.neubiorev.2021.01.002.
Kokol, P., Vošner, H.B., Završnik, J., Vermeulen, J., Shohieb, S., & Peinemann, F. (2020). Serious game-based intervention for children with developmental disabilities. Curr Pediatr Rev, 16, 26–32. https://doi.org/10.2174/1573396315666190808115238.
Lougheed, D.C. (2019). Approach to providing care for aging adults with intellectual and developmental disabilities. Canadian Family Physician, 65(Suppl 1), S14–S18.
Mamuroh, L., & Nurhakim, F. (2019). Relationship between husband support And pregnancy control In pregnant women Sukawening Puskesmas Garut. Journal of Maternity Care and Reproductive Health, 2(1), 51-56. https://doi.org/10.36780/jmcrh.v2i1.
Maryati, I., Astuti, N. F., & Solehati, T. (2018). The Perception of Women with Postpartum Depression Towards Family Supports. Journal of Maternity Care and Reproductive Health, 1(1), 1-9. https://doi.org/10.36780/jmcrh.v1i1.11.
Medina-Mirapeix, F., Lillo-Navarro, C., Montilla-Herrador, J., Gacto-Sánchez, M., Franco-Sierra, M.Á., & Escolar-Reina, P. (2017). Predictors of parents’ adherence to home exercise programs for children with developmental disabilities, regarding both exercise frequency and duration: A survey design. Eur J Phys Rehabil Med, 53(4), 545–555. https://doi.org/10.23736/s1973-9087.17.04464-1.
Ministry of Health, Labour and Welfare (2004). Developmental disability support measures. [Cited 15 Mar 2021.] Available from URL: https://www.mhlw.go.jp/stf/seisakunitsuite/bunya/hukushi_kaigo/shougaishahukushi/hattatsu/index.html.
Ministry of Health, Labour and Welfare (2020). Reiwa 2nd year white paper on measures against the declining birthrate. [Cited 21 Mar 2021.] Available from URL: https://www8.cao.go.jp/shoushi/shoushika/whitepaper/measures/w-2020/r02pdfhonpen/pdf/s1-7.pdf.
Ministry of Health, Labour and Welfare (2021). Table 5: Total fertility rate by mother’s age (5-year-old class) and birth order (breakdown). [Cited 21 Mar 2021.] Available from URL: https://www.mhlw.go.jp/toukei/saikin/hw/jinkou/kakutei19/dl/09_h5.pdf.
Ministry of Health, Labour and Welfare (2020). What is a local child-rearing support base project (overview). [Cited 21 Mar 2021.] Available from URL: https://www.mhlw.go.jp/content/000666540.pdf.
Nakazawa, K., Haruki, A., & Koujida, R. (2018). [Aiming to improve perinatal mental health literacy] Examination of continuous childcare support from pregnancy for women with autism spectrum disorders. The Japan Perinatal Mental Health Society, 4(1), 67–72. (in Japanese).
Olusanya, B.O., Davis, C.A., Wertlieb, D., Boo, N-Y., Nair, M.K.C., Halpern, R., Kuper, H., Breinbauer, C., Vries, P.J., Gladstone, M., Halfon, N., Kancherla, V., Mulaudzi, M.C., Kakooza-Mwesige, A., Ogbo, F.A., Olusanya, J.O., Williams, A.N., Wright, S.M., Manguerra, H., Smith, A., Echko, M., Ikeda, C., Liu, A., Millear, A., Ballesteros, K., Nichols, E., Erskine, H.E., Santomauro, D., Rankin, Z., Smith, M., Whiteford, H.A., Olsen, H.A., & Kassebaum, N.J. (2018). Developmental disabilities among children younger than 5 years in 195 countries and territories, 1990–2016: A systematic analysis for the Global Burden of Disease Study 2016. Lancet Glob Health, 6, e1100–e1121. https://doi.org/10.1016/S2214-109X(18)30309-7.
Pan, W-L., Chang, C-W., Chen, S-M., & Gau, M-L. (2019). Assessing the effectiveness of mindfulness based programs on mental health during pregnancy and early motherhood - A randomized control trial. BMC Pregnancy Childbirth, 19, 346. https://doi.org/10.1186/s12884-019-2503-4.
Potvin, L.A., & Fulford, C. (2019). What adults with intellectual and developmental disabilities say they need to access annual health examinations: System navigation support and person-centred care. Can Fam Physician, 65(Suppl 1), S47–S52.
Sasaki, M., Soto, C., Kudou, H., & Chouri, A. (2015). Consideration on pregnancy, childbirth, and childcare support for women with Asperger’s syndrome: Approach to cases characterized by commitment and comprehension. Proceedings of the Japanese Nursing Association: Health Promotion, 45, 101–104.
Usui, J., & Ishimura, I. (2017). Necessary assistance in informing those with developmental disabilities? —Through interviews with those concerned—. Tokyo Seitoku University Clinical Psychology Research, 17, 153–159. (in Japanese).
Xie, E., & Gemmill, M. (2018). Exploring the prenatal experience of women with intellectual and developmental disabilities. Canadian Family Physician, 64, S70–S75.
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